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You may have to explain to a person with a learning disability that a family member has died and are concerned about their level of understanding and how to do this. Using storyboards and memory books may be a helpful way of communicating with a person with a learning disability about death and enabling them to share their feelings. ‘Access to Learning Disability Healthcare' has developed a Make a Difference Toolkit which includes information and resources on how to support people with a learning disability with end of life care and bereavement. There are also some very helpful books ‘Books Beyond Words' which can be purchased individually on death and loss of a family member. Here is information and advice as well as easy to read resources on how to help people with a learning disability deal with grief .…

Connect to Support Surrey, your local directory for care and support services. Whether you're a resident or a professional looking, this guide will help you navigate and make the most from the site. Connect to Support Surrey has a range of care and support services in Surrey, including: community groups and activities help at home services such as, cleaning, meals, shopping regulated care providers for personal care needs transport options , food banks , and more Connect to Support Surrey also has information pages with useful content on various topics, from staying independent to end-of-life care .…

What you can do at a day centre Day centres and community centres offer activities, meals and opportunities to meet other people. They can help you stay active, make friends and take part in community life. Some centres offer transport or can help you arrange transport to and from activities. Activities may include: lunch clubs arts and crafts quizzes and games exercise sessions social events information and advice Some centres are open to everyone, while others are aimed at older people or people with additional support needs. Day centres Day centres, run by the local district or borough councils, often run activities and lunch clubs. They are great places to meet old and new friends. Some can also provide a mini-bus to pick you up and take you home. If you need transport to go to day centres, or to get out and see friends, look through the community transport organisations , which…

You can find arts and sports and groups on Connect to Support Surrey . These groups can help you out of the house and make new friends. The groups include: art choirs gardening walking groups walking sports like footfall or netball Social prescribing can help you to improve your health and wellbeing. The service helps you find things you can do in your local community. It's free to use, although some of activities may charge. All the services can give you advice and support on topics like: mental health emotional wellbeing a chance to get out and meet new people Depending on where you live you may have to go through: a GP or nurse social worker benefits advisor community pharmacist In other areas you can contact them direct. Healthy Surrey can provide help and support if you want to: improve your mental wellbeing get more active and lead a healthier life The website has links…

As a parent carer there will be lots of things to think about when you are told your child has a life limiting or life threatening condition. Getting a diagnosis If you have just heard the news that your child has a life-limiting or life-threatening condition you will be in a state of shock and feeling overwhelmed. As well as feeling extraordinarily emotional you will have lots of questions, such as: How do I tell my child about their diagnosis? How do I tell others in the family? What will the future look like for my child? How will it impact on my child and others in the family, particularly any siblings? How can I make sure my child and family have as normal a life as possible? How can I cope physically and emotionally? A diagnosis should have been given to you via a face to face meeting in privacy and with someone there to support you. You should have been given the opportunity…

these discussions. Remember that any other children in your family are likely to have questions and concerns about their brother or sister. Generally speaking it is best to keep them in the picture but avoid giving them more information than your child with the life limiting condition…

It may be that school is still a major focus of their lives. It is important to keep providing your child, as far as is possible, the opportunity to learn, develop, play and experience a normal life. School age children should be enabled to attend their own school for as long as they can, so that they can benefit from interacting with friends as well as receiving an education. The school can also provide your child and your family with an important source of support, including giving you a break during the day. If your child is no longer able to attend school due to their deteriorating health then education can continue through the hospital or hospice school or through the home tuition service for as long as your child is enjoying the experience and still learning. Things to think about Make sure your child’s school is part of the multidisciplinary team supporting your child. Keep…

equipment, support and life skills they need to reach their full potential.…

You and your child’s transport needs will be a crucial part of your child and family care plan. Getting the right help with transport issues can improve daily family life. You can ask your child’s care team about getting driving lessons, accessing specially adapted cars to take bulky equipment or adapted car seats. You can also think about applying for the Blue Badge scheme for disabled parking. To get mobility allowance your child must be under the age of 16. For the low rate mobility component they must be aged over five, and for the high rate mobility component they must be aged over three. If you are the parent for a young person over 16 and they have care or mobility needs, they may be able to claim a Personal Independence Payment instead. The Motability Scheme helps you get mobile by exchanging your child’s higher rate mobility allowance to lease a new affordable car…