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With advances in medicines and technology more and more children with life limiting or life threatening conditions are now living into adulthood. Transition into adulthood is not a one off event but is a process that takes place during your child’s teenage years and should start at around 14 ye…

Surrey Short Breaks for Disabled Children funds voluntary organisations and SEND schools to provide short break services, including after school clubs, holiday schemes, home-care and more. The Surrey Children’s Disability Register is a voluntary register for a disability or impairment aged 0 to…

This accessibility statement applies to connecttosupportsurrey.org.uk. This website is run by Surrey County Council. We are committed to providing an accessible website that is easy to use by anyone, whatever their age, background, access device or level of ability/disability. This means that…

As a parent our natural instinct is to protect. This may mean you want to delay talking to your child about their diagnosis and prognosis for as long as possible. However, research has shown that it is better to have honest and open conversations as early on as possible for the following reasons:…

Coping with bereavement is difficult when death is expected, but if the death is sudden it is even harder to deal with. A sudden death might be the result of: A murder. Road or other accident. Heart attack (which is also the second highest cause of death after cancer). Drug or alcohol o…

carers

SFRS-support-in-surrey This guide provides information about help and support available in Surrey to help you stay independent, safe and well, including: Staying Safe Abuse and safeguarding Scams and fraud Money, benefits and advice Health Disability Equipment and technology Tran…

Here’s what you should expect as a parent carer in terms of providing care to your child and ensuring you and your family have the support you need for providing quality family life. Child and family assessment Your child should receive a multi-disciplinary and multi-agency assessment as soon as…

Funding end of life care can be expensive, not just for the person you care for but also for you as the carer. The person you care for may have had to give up work because they are too unwell and/or you may have had to give up work to provide the care they need. There are a range of sources of …

You and your child’s transport needs will be a crucial part of your child and family care plan. Getting the right help with transport issues can improve daily family life. You can ask your child’s care team about getting driving lessons, accessing specially adapted cars to take bulky equipment …