There may be a number of triggers that start a conversation about death with the person you care for. It may be a personal need or a family situation that has arisen, but most commonly it is in response to a terminal diagnosis being given and death is in the forefront of everyone’s mind. You… to remember there is no right or wrong way to have a conversation as everyone is different. Do what feels right for you. Things to think about Have the conversation as soon as possible and before it is too late. The person you care for may lose their ability to express their wishes unexpectedly. Spot…? for the sorts of questions to ask. Don’t rush the conversation – it’s a process and may involve a number of shorter conversations. Little and often may work best. Give some warning to the person you care for that you want to talk about end of life decisions so it doesn’t come as a complete shock…
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involving you and key staff supporting your child. This is likely to include hospital staff, community health staff, social care workers, your GP and you and immediate family. You, your family and your child’s needs should be discussed and a plan drawn up to enable your child to return home safely. The following issues should be covered within a transfer plan: Key worker to coordinate your child’s care. Deciding where you want your child to be cared for. Risk assessment of your home and what needs to be put in place to minimise the risks for example aids and equipment. Needs… plan is in place. Ensure any equipment, medication and supplies that you need to care for your child have been provided before your child is discharged home. Check that any necessary transport arrangements are in place. Make sure you receive all the training you need in order to care for your…
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local children’s hospice can provide you and your child emotional support as well as a wide range of other services such as day care,respite breaks, telephone advice, hospice at home. Your family GP will be an important part of your child’s medical care and can provide emotional support for you… as nursing support and care in the home. Your local paediatrician will also give additional support as well as overseeing your child’s physical health care needs. Action for Carers in Surrey can provide support to you and your family including siblings under the age of 18 and those siblings between 18… are in hospital or hospice talk to a member of staff about what spiritual care is available and ask if the appropriate person can be contacted. The hospital or hospice will have a chapel or multi-faith room. A paediatric psychologist can help you and your child cope with the emotional demands of the illness…