Free event offers advice and support for people affected by dementia…
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Find information and advice
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Action for Carers and The Hive host free information fair to support unpaid carers in Surrey…
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Support for complex emotions Free daily groups for adults who need safe, shared support…
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Free information and local support for carers…
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Sessions in Guildford and Waverley
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See the updated Community Connections timetable across Surrey
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and pain-free as possible and involves managing often complex physical symptoms. It also ensures you, as their unpaid carer, get the emotional support that you need. End of life care also involves talking about what to expect towards the end of life: talking about what is important to the person… when first receiving a diagnosis. In particular, there is a lot of confusion about what is palliative care and what is end of life care. A life-limiting illness is an illness for which there is no cure, for example, motor neurone disease, dementia, or advanced cancer. Sometimes this is referred to as a terminal illness. Palliative care Palliative care is the treatment, care, and support for people with a life-limiting illness and their families and carers. Any treatment for the person you care for at this stage will be to manage their symptoms to ensure they have the best quality of life…
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assessment. Specialist voluntary providers. There are a number of voluntary organisations and private care providers in Surrey that can help you to have a break. In particular Crossroads Care Surrey (in partnership with the NHS) can provide a free, end-of-life carer support service for carers and people affected by life-limiting illnesses. A palliative-care-trained carer support worker will take over the caring role, giving you, the unpaid carer, regular breaks. Crossroads also run a variety of social clubs for adults with disabilities, including dementia, which may help you to have a break… want less frequent but longer breaks enabling you to take a holiday, catch up on sleep, or pursue a hobby. Whilst having that break someone will need to look after the person you normally care for. This could be another family member, a care worker coming in to provide support in the home…
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to understand. Ask for an interpreter if necessary. Ask for information about support groups and available emotional support for yourself and your family in your local area. Consider who and how you are going to tell others outside the immediate family, for example school, wider family and friends. How… As a parent carer there will be lots of things to think about when you are told your child has a life limiting or life threatening condition. Getting a diagnosis If you have just heard the news that your child has a life-limiting or life-threatening condition you will be in a state of shock… in the family, particularly any siblings? How can I make sure my child and family have as normal a life as possible? How can I cope physically and emotionally? A diagnosis should have been given to you via a face to face meeting in privacy and with someone there to support you. You should have been…
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. An assessment of your child’s needs will be carried out by a social care worker and you as a parent carer are also entitled to a carer’s assessment to think about your own support needs – this may include benefits advice, help in the home and services that give you a break. A professional involved… be benefit from palliative care. The team can also ensure an integrated ongoing approach to your child’s treatment and care as well as family support by liaising effectively with local community support. Children’s Hospice As well as providing specialist nursing care and short breaks on site (often referred to as ‘respite care’), a children’s hospice will provide specialist nursing care in the family home, symptom management, end of life care and bereavement support. Tailored support is free of charge to families and includes a named key worker and a comprehensive range of therapies and support…