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You may need specialist aids and equipment to care for your child. You and your child may be assessed by an Occupational Therapist from your primary care trust or children’s team who can inform you about the options and services open to you. Any aids and equipment should be included in your Child…

as short films they have written and made. The app can also be used by friends, teachers, parents, and professionals who would like to know how to support bereaved young people. Remember it is important to be safe when using chat rooms. Agree rules with your parents about what you can and can’t do… Again This website provides a safe space where you can learn from other young people, how to cope with grief and feel less alone.…

When a person receives a terminal diagnosis it can create a wide range of emotions for them and you as their family carer. You and the person may feel angry, may feel it is unfair, may feel sad, shocked, or in denial. Living with a terminal illness can sometimes make family relationships diffic…

Equipment Equipment can be bought directly from a specialist supplier or household shop without an OT assessment. This might include more minor equipment items such as a raised toilet seat, pressure mattress, bath hoist, over bed table, wheelchair, crutches, or a hospital style bed. If not having an OT assessment it is best the person tries it out first either as a trial period in the home or the store, particularly if it is an expensive item. You, as the carer, also need to ensure it is safe to use and not putting your own health at risk. If the equipment proves helpful you can still arrange for a social care assessment to see if the person would be eligible for financial help. Equipment such as a hospital bed, mattress, or commode can be provided by your local community nursing team. The person’s GP can make a referral to the nursing team and they will come to the home to assess…

Adaptations can range in scale and cost. It might be as small as fixing an intercom or as large as an extension to the home. Your local social care team may give financial support for minor adaptations. You may also be entitled to financial help with more major adaptations via a Disabled Faciliti…

Whilst the person you care for is still able to swallow, tablets or liquid medicine will continue to be prescribed by their GP. If the person wishes you to help administer their medication then make sure you are giving the medicines at the right time of day. If you are giving them at the wrong ti…

Here’s a summary of how you and the person you care for can work together to get their financial affairs in order in preparation for end of life. It explores what funding sources are out there to support the person you care for, as well as you as their carer. Getting financial affairs in order …

the person’s wishes. There could be circumstances where it is not safe to follow an aspect or aspects of the care plan and this should be fully explained to you. Things to think about Talk to the person about their wishes. Go to What does planning ahead involve? to help you. Make sure…

Advance Care Plans are usually made by someone with their healthcare team when they are approaching end of life, although they can be started at any stage in life. The plan is used to record the person’s treatment and care wishes and can be reviewed and updated. If the person you care for has made an Advance Decision to Refuse Treatment, Advance Statement, or Lasting Power of Attorney, a note of these must be made in the advance care plan. An Advance Care Plan is not a legally binding document; however, there has to be a good reason for health and care staff to ignore the person’s wishes. There could be circumstances where it is not safe to follow an aspect or aspects of the care plan and this should be fully explained to you. There are a variety of national and local forms and templates that can be used to record different forms of advanced care planning in Surrey…

Organs can only be donated if the person you care for dies in hospital, usually in intensive care where the blood can be kept circulating. However, tissue (such as bone, skin, heart valves, corneas, and many others) can be donated up to 48 hours after a death which does not necessarily occur in…