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  • You may be trying to juggle a job with your caring role which is putting you under a lot of pressure and stress. There are statutory rights for carers under the Equalities Act 2010. As you are looking after someone who is terminally ill, you are protected from discrimination because of your caring responsibilities. This is because you are counted as being ‘associated’ with someone who is protected by the law because of their age or disability. This means your employer cannot treat you less favourably because of your caring responsibilities. For more information on these statutory rights… the home pressures you are under and may even be able to help you access some support for example in-house counselling service. Some employers even have a carer’s policy or a carer support group to support staff in the workplace. Talk to your manager or to someone in HR to see what is in place…

  • as possible after diagnosis and returning home. This assessment provides the opportunity for you and your child to express what is important and to identify the needs of the whole family. The assessment process should include a team meeting involving you and key people from across different… and as a result require additional healthcare support at home and in the community. There are specific criteria for NHS funded children and young people’s continuing healthcare which are significantly different to NHS Continuing Health Care for adults. For more information on the National… on relationships within the family and your other parenting responsibilities. If your child is entitled to social care support then a break from your caring role should form part of any package of support if this is something that you feel you need. Go to Taking a family break for more…

  • , Wheelchair Accessible Vehicle, scooter or powered wheelchair. If your child is awarded the highest rate of DLA mobility component, you may be exempt from paying Vehicle Excise Duty. For advice and information on home to school transport you may find IPSEA useful. For more general information about…

  • Surrey Short Breaks for Disabled Children funds voluntary organisations and SEND schools to provide short break services, including after school clubs, holiday schemes, home-care and more. The Surrey Children’s Disability Register is a voluntary register for a disability or impairment aged 0… using the details above. Once registered, families will automatically receive the discount card in the post. Parent Carer Break Grants are payments made to support parents who have a disabled child under 18 living in Surrey, who are not currently receiving services from Surrey County Council Children’s Services and don’t have a social care worker. Parents cannot apply directly themselves, but anyone working with a family can apply on your behalf – such as: a carer’s support worker at Action for Carers Surrey, teachers and Home School Link workers, nurses and health visitors, Children’s…

  • carers and adult young carers have the right to an assessment of their own needs separate from an assessment of the person you care for or other carers in the family. This is your opportunity to explain what is happening at home and your worries and to see if you can get more help. You will need to see… at home who is approaching the end of life then they will be able to be more understanding with any school pressures and try to help. You may find it easier for your parents or other family members to tell the school. It is important the school know as they may have: A school counsellor for you… young people directly working with the charity. It includes information about bereavement and grief, feelings, and how to get help as well as a built-in notepad so you can write down how you are feeling with links to the website. It also includes short stories from bereaved young people as well…