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vehicle. You can also pay an extra amount of money if you want a more expensive vehicle. With hire purchase, the price of the car will be agreed directly with the Motability dealer, and you will own the vehicle outright at the end of the agreement. With contract hire, you won’t own a vehicle…

As well as having lots of questions about your child’s diagnosis and prognosis you will also find yourself thrown into the ‘deep end’ of the medical and social care world, including medical ‘talk’, different professional titles, equipment and medicines. To get you started here are a few brief descriptions of where care can be provided and who can provide specific child care services. You can find more general information relating to end of life care , where end of life care is provided and who might be involved in end of life care . Where to get help Hospital Palliative and end of life… referred to as ‘respite care’), a children’s hospice will provide specialist nursing care in the family home, symptom management, end of life care and bereavement support. Tailored support is free of charge to families and includes a named key worker and a comprehensive range of therapies and support…

There may be a number of people who become involved in the person you care for’s end of life care and the provision of support to you as their carer. The person you care for may receive support from some or all of the following people, and you and the person you care for can ask questions to any… will provide the best possible care for both of you and can be helpful in planning ahead for end of life together. A counsellor is trained to help people in all types of situations, including end of life. They will be able to help you and the person you care for to understand and express their feelings… about end of life care without judgement and offer support which is right for you as an individual. They will be aware of the importance of diversity and people’s different views and beliefs. An occupational therapist (OT) will assess the skills and abilities of the person you care for in relation…

Coping with bereavement is difficult when death is expected, but if the death is sudden it is even harder to deal with. A sudden death might be the result of: A murder. Road or other accident. Heart attack (which is also the second highest cause of death after cancer). Drug or alcohol overdose. Suicide. It may be that the person you were caring for was terminally ill and receiving long-term care, but their death occurs in a way that seems sudden and unexpected to you. Perhaps the person you cared for died after a few weeks when they were expected to live for several months. Whatever the nature of the death, if you have experienced a person close to you dying suddenly you are likely to be experiencing a tsunami of emotions and a raft of extra dimensions of grief including the following: Shock, leading to numbness, disbelief, and despair. Guilt at being the one…

Difficulties with breathing are a common experience as the person approaches the end of life. The doctor may refer to this as dyspnoea. Breathing difficulties may make conversation with the person much harder. Very near death, the person might have very noisy breathing but this is not usually… information and equipment can be given. Ask if a special mattress or chair cushion might help. Digestive problems Nausea, vomiting, constipation, and loss of appetite are common issues at the end of life. The causes and treatments for these symptoms are varied, so talk to a doctor or nurse right away… important than eating. But you may find the person even stops drinking and this may be a further indication of the end of life approaching. For further information on how to manage swallowing difficulties and guidance on mouth care. For details of what to expect when someone is approaching the end…

is supported to plan for their future and is involved in assessments and in developing a comprehensive plan which reflects their wishes. Every young person has both an end of life care plan and plan for ongoing care and support in adult services. Children’s and adult services will work together…