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or seriously ill child or young person to have the opportunity to choose how they would like to take a break, with a view to improving the quality of life, health and wellbeing of the whole family. The Family fund will also pay for washing machines, sensory toys, bedding, tablets, furniture, outdoor play… care so that you can have a regular break from caring. Parent carer breaks should be built into the child and family care plan. Having a holiday or break for your child on their own or all together can make a massive difference to your quality of life and enables you to build important memories…

When a person receives a terminal diagnosis it can create a wide range of emotions for them and you as their family carer. You and the person may feel angry, may feel it is unfair, may feel sad, shocked, or in denial. Living with a terminal illness can sometimes make family relationships diffic…

You may find the person you care for is challenging in their behaviour . ‘Challenging’ is often defined as when a person is putting themselves or those around them at risk, including yourself as their carer, or where their behaviour is going to lead to a poorer quality of life. It can also impact their ability to join everyday activities. It can include aggression, self harm, destructive behaviour, and disruptiveness. It is often seen in people who have a learning disability or a mental health problem such as dementia and it can affect the person’s ability to communicate . Things to think about As a carer try to understand why the person is behaving in the way they are. For example, they might feel anxious or bored or be in pain. They may be behaving in a certain way to get your attention. If this is the case then consider not responding directly to their behaviour although you…

specialised nursing care, medications, medical equipment, and supplies in the person’s own home that might help you. They can help improve the person’s quality of life by managing pain and the symptoms of their illness, but they can also give you emotional support and guidance. So if you haven’t…

to make decisions separately. The donor can also choose if they want their attorney(s) to be able to make decisions about life-sustaining treatment. As long as the attorney is acting in the best interests of the donor they cannot be overruled by anyone, including healthcare professionals and family…

in their family. It is possible to make an emergency application where a person’s life expectancy is very short or to execute a will. You can also make such an application if the person you care for needs urgent medical treatment or you want to prevent them from being removed from the place where…

Here’s an outline of what happens upon death and in the few days after death. It explores how you might be feeling and what you need to be aware of in terms of the verification of death, getting a medical certificate, as well as how to register the death. It is very difficult to predict how you are going to feel immediately after the person dies. You may feel completely numb and in shock, disconnected from everyone, place, and time. You may feel overcome with sadness or even anger at what has just happened. If the person has been ill for some time, with a reduced quality of life, you may even feel relief. You won’t know until it happens and there is no right or wrong way to feel. If the person dies in hospital, hospice, or care home you may want to ask staff for some time with the body to give you the space you need to cope with how you are feeling. Last offices or laying out…

alive, or blaming yourself in some way. Anxiety, panic attacks, and emotional exhaustion. Extended crying and sobbing. Inability to sleep or nightmares. Desperation to see the person you cared for again. Irrational thoughts. Inability to eat or concentrate, loss of interest in life…

charity providing training, learning, and mentoring for people overcoming disadvantages and transforming their skills for life, learning, and work. For more general information see Marie Curie .…

The When someone dies (GOV.UK) provides a useful step-by-step guide on what to do after someone dies. One of the first things to do when the person you cared for has died is to check whether there is a will. They may also have left other instructions in ‘letters of wishes’. You may already know…