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Are you seeking information and further guidance on how to make decisions together about end of life care? Or perhaps you have recently lost a loved one and need help with immediate practical, legal, and financial issues as well as coping with grief. Whatever the situation, time will be precious to you. There is already a wealth of information for carers about end of life care, both on the internet and in leaflet form; however, it is sometimes difficult and time-consuming to find and work through. You and the person you care for will come across a lot of confusing terms and language when first receiving a diagnosis. In particular, there is a lot of confusion about what is palliative care and what is end of life care. A life-limiting illness is an illness for which there is no cure, for example, motor neurone disease, dementia, or advanced cancer. Sometimes this is referred…

be nearing the end of their life, they may be given NHS continuing healthcare on a fast-track basis. See paying for care for more information. When thinking with the person you care about where to receive end of life care go to Choosing where to be cared for . Hospice care You may think that a hospice can only provide care when someone is about to die. This is a myth; as hospices can provide care for anyone with a terminal illness, sometimes from the time they receive a terminal diagnosis. In other words, hospices provide palliative care including end of life care. The person you care… or they may need to go into hospital in an emergency. Decisions about their end of life care may be made by staff in Accident and Emergency or by an assessment unit or ward. The hospital may have a palliative care unit or team where staff will help to control symptoms and provide emotional support…

Funding end of life care can be expensive, not just for the person you care for but also for you as the carer. The person you care for may have had to give up work because they are too unwell and/or you may have had to give up work to provide the care they need. There are a range of sources… organisations and local charities that could provide help. NHS funding The NHS may fund nursing care costs in certain circumstances for the person you care for as they approach end of life. There are two different types of funding: NHS Continuing Healthcare : under this scheme, the NHS pays for care home…. As well as many national and local charities providing information and advice on end of life care, some can also provide free support, practical help such as a sitting service, transport to medical appointments, and one-off grants. Hospices can also provide free care for those nearing end of life…

There may be a number of people who become involved in the person you care for’s end of life care and the provision of support to you as their carer. The person you care for may receive support from some or all of the following people, and you and the person you care for can ask questions to any… will provide the best possible care for both of you and can be helpful in planning ahead for end of life together. A counsellor is trained to help people in all types of situations, including end of life. They will be able to help you and the person you care for to understand and express their feelings… about end of life care without judgement and offer support which is right for you as an individual. They will be aware of the importance of diversity and people’s different views and beliefs. An occupational therapist (OT) will assess the skills and abilities of the person you care for in relation…

you like this to be in your own home, at the hospital or hospice, or at the local social care teams office? Prepare for your carer’s assessment by thinking about what you want to cover and discuss with the assessor. Be honest and realistic about the impact of your end of life caring role… of life care to adults in Surrey are rolling out the use of a Carers Support Needs Assessment Tool . This short simple tool is designed to enable carers to identify what support they need to help them provide palliative and end of life care for a family member or friend. It is not a substitute…. As long as your life is affected in some way by your caring role you are entitled to an assessment. If there are other people in your family providing support to the same person they too may benefit from a carer’s assessment. A carer’s assessment isn’t rationed to one per cared for person. If you…

assessment. Specialist voluntary providers. There are a number of voluntary organisations and private care providers in Surrey that can help you to have a break. In particular Crossroads Care Surrey (in partnership with the NHS) can provide a free, end-of-life carer support service for carers… Carers UK’s factsheet about taking a break . Things to think about Try to get a good night’s sleep, although this can be difficult when you are a carer. The person you care for may need help during the night and you need to be with them. Worrying about them and their end of life care can also keep… for will be well looked after whilst you are not there, but try to remind yourself that you come back better able to deal with the demands of end of life care. …

and Handling service provides safe solutions for carers who carry out moving and handling as part of their role. This support is free. Our mental health is also very important when providing end of life care. So talking about your feelings and not bottling everything up is vital. You may have a very…

descriptions of where care can be provided and who can provide specific child care services. You can find more general information relating to end of life care , where end of life care is provided and who might be involved in end of life care . Where to get help Hospital Palliative and end of life… referred to as ‘respite care’), a children’s hospice will provide specialist nursing care in the family home, symptom management, end of life care and bereavement support. Tailored support is free of charge to families and includes a named key worker and a comprehensive range of therapies and support… and education practitioners. Community children’s nurses Provide specialist nursing care to children at home and will often act as a child’s key worker. They will give specialist intervention for children and young people who have a life limiting illness requiring treatment, symptom control or end…

relationships, social activities, education, religious, spiritual and cultural beliefs and values influencing care. Record of significant discussions with child or young person and their parent carers. Agreed treatment plans for end of life care and objectives. 24 hour access to pain… Here’s what you should expect as a parent carer in terms of providing care to your child and ensuring you and your family have the support you need for providing quality family life. Child and family assessment Your child should receive a multi-disciplinary and multi-agency assessment as soon… the best family life possible. It is a working document that is shared with professionals involved in your child’s care and provides the following details: Services and support needed to meet the assessed needs​ of your child, you and your family, including other children in your family. What…

is supported to plan for their future and is involved in assessments and in developing a comprehensive plan which reflects their wishes. Every young person has both an end of life care plan and plan for ongoing care and support in adult services. Children’s and adult services will work together… With advances in medicines and technology more and more children with life limiting or life threatening conditions are now living into adulthood. Transition into adulthood is not a one off event but is a process that takes place during your child’s teenage years and should start at around 14… health services will be especially important for a young person with complex and life threatening health conditions and may need to include hospital and hospice care teams. For further information go to together for short live . Things to think about From the age of 14 years, healthcare…