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Education for your child

It may be that school is still a major focus of their lives. It is important to keep providing your child, as far as is possible, the opportunity to learn, develop, play and experience a normal life. School age children should be enabled to attend their own school for as long as they can, so that they can benefit from interacting with friends as well as receiving an education.

The school can also provide your child and your family with an important source of support, including giving you a break during the day.

If your child is no longer able to attend school due to their deteriorating health then education can continue through the hospital or hospice school or through the home tuition service for as long as your child is enjoying the experience and still learning.

Things to think about

  1. Make sure your child’s school is part of the multidisciplinary team supporting your child.
  2. Keep your child’s school informed of your child’s health condition and any absences.
  3. Explore with the school how to help your child keep up with school work and any additional support they might need.
  4. Ensure the schools of any other children in your family are aware of the family situation so that adequate support can be given to them as well.