Huntington's Disease Association: Support in the South East of England

Support people whether they are looking for peer support or advice from a professional.

Their specialist advisers are experienced and compassionate care management professionals.

They support anyone who needs their help at any stage of the Huntington's journey. They can help people living with the disease, people at risk of inheriting the disease, family members and carers, and children or young people. They can even advise friends, neighbours, employers and your medical team.

Their Specialist Huntington's Disease Advisers can help by:

• providing a listening ear, advice and emotional support
• delivering their confidential telephone helpline service
• coordinating support with medical, health and social care professionals
• making referrals into specialist Huntington's disease clinics
• advocating for the person with Huntington's disease to get the best support organising and attending local support networks and carers' group meetings providing information resources on symptoms and how to manage them connecting younger family members with their Youth Engagement Service - HDYES giving support for sensitive end-of-life care educating medical, health and social care professionals