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You may need specialist aids and equipment to care for your child. You and your child may be assessed by an Occupational Therapist from your primary care trust or children’s team who can inform you about the options and services open to you. Any aids and equipment should be included in your… housing will meet your family’s needs. For more general information about types of aids and equipment available to parents caring for a child with an illness/disabilities go to the Disabled Living Foundation website. Newlife is a charity for disabled children helps disabled and terminally ill children in the UK by providing equipment to help individual children as well providing nurse led information service and funding research. They have a special Just Can’t Wait equipment service for families of terminally ill children. Helpline: 0800 902 0095 Whizz Kids provides disabled children…

Equipment Equipment can be bought directly from a specialist supplier or household shop without an OT assessment. This might include more minor equipment items such as a raised toilet seat, pressure mattress, bath hoist, over bed table, wheelchair, crutches, or a hospital style bed. If not having an OT assessment it is best the person tries it out first either as a trial period in the home or the store, particularly if it is an expensive item. You, as the carer, also need to ensure it is safe to use and not putting your own health at risk. If the equipment proves helpful you can still arrange for a social care assessment to see if the person would be eligible for financial help. Equipment such as a hospital bed, mattress, or commode can be provided by your local community nursing team. The person’s GP can make a referral to the nursing team and they will come to the home to assess…

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agencies and providers involved in the care of your child. This will avoid you having to repeat your needs and that of your child over and over again. The assessment should include your own needs and that of your wider family, including sibling carers and you should be central to the process and viewed… are encouraged to work in partnership with the team. Ensure the assessment covers what is most important to you and your family as well as your child’s: health and symptoms; needs for aids, equipment and supplies; education and leisure, as well as your whole family’s emotional, practical, social…). ​Support with managing symptoms and care You may find that, as part of their care plan, that you will have to provide personal care to your child, such as administering medication, using specialised aids and equipment and giving specialised treatments. It can prove to be a major worry to you…

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. The following issues should be covered within a transfer plan: Key worker to coordinate your child’s care​. Deciding where you want your child to be cared for. Risk assessment of your home and what needs to be put in place to minimise the risks for example aids and equipment. Needs… plan is in place. Ensure any equipment, medication and supplies that you need to care for your child have been provided before your child is discharged home. Check that any necessary transport arrangements are in place. Make sure you receive all the training you need in order to care for your…

You and your child’s transport needs will be a crucial part of your child and family care plan. Getting the right help with transport issues can improve daily family life. You can ask your child’s care team about getting driving lessons, accessing specially adapted cars to take bulky equipment or adapted car seats. You can also think about applying for the Blue Badge scheme for disabled parking. To get mobility allowance your child must be under the age of 16. For the low rate mobility component they must be aged over five, and for the high rate mobility component they must be aged over three. If you are the parent for a young person over 16 and they have care or mobility needs, they may be able to claim a Personal Independence Payment instead. The Motability Scheme helps you get mobile by exchanging your child’s higher rate mobility allowance to lease a new affordable car…

, a contribution towards your child accessing play or activities, days out, equipment to help you as a parent carer and much more. Once the application has been submitted, you will be contacted to discuss your needs, with a payment following shortly afterwards. For more details, speak to any… equipment, clothing, and computers. Please note grants for a car, driving lessons, items already purchased or requests where health or social care has assessed a need and have a responsibility to provide an item or break will not be considered. Surrey Family Information Service (FIS) is a statutory…

Adaptations can range in scale and cost. It might be as small as fixing an intercom or as large as an extension to the home. Your local social care team may give financial support for minor adaptations. You may also be entitled to financial help with more major adaptations via a Disabled Facilities Grant. Go to Funding end of life care for more information. Things to think about Make sure the equipment works not just for the person but also for you. Carers UK has a room by room guide on types of equipment that may or may not help. Any decisions about equipment and adaptations also… and handle the person safely. Explore with the person you care for if it is realistic to provide appropriate treatment and care in the home and what impact the necessary equipment, technology, and adaptations might have on their home environment. …

specialised nursing care, medications, medical equipment, and supplies in the person’s own home that might help you. They can help improve the person’s quality of life by managing pain and the symptoms of their illness, but they can also give you emotional support and guidance. So if you haven’t…