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you like this to be in your own home, at the hospital or hospice, or at the local social care teams office? Prepare for your carer’s assessment by thinking about what you want to cover and discuss with the assessor. Be honest and realistic about the impact of your end of life caring role…

the home pressures you are under and may even be able to help you access some support for example in-house counselling service. Some employers even have a carer’s policy or a carer support group to support staff in the workplace. Talk to your manager or to someone in HR to see what is in place…

It is likely that your child will have been diagnosed in a hospital setting. The time that your child is able to return home will vary depending on the nature of your child’s illness. It may be your child needs immediate medical attention following diagnosis or your child may be able to go home straight after diagnosis. Whenever is the right time for your child to be discharged home there will be a number of things that you will need to be aware of: Planning for transfer from hospital should start as soon as possible. As part of that process there should be an initial assessment meeting involving you and key staff supporting your child. This is likely to include hospital staff, community health staff, social care workers, your GP and you and immediate family. You, your family and your child’s needs should be discussed and a plan drawn up to enable your child to return home safely…

local children’s hospice can provide you and your child emotional support as well as a wide range of other services such as day care,respite breaks, telephone advice, hospice at home. Your family GP will be an important part of your child’s medical care and can provide emotional support for you… as nursing support and care in the home. Your local paediatrician will also give additional support as well as overseeing your child’s physical health care needs. Action for Carers in Surrey can provide support to you and your family including siblings under the age of 18 and those siblings between 18…

It may be that school is still a major focus of their lives. It is important to keep providing your child, as far as is possible, the opportunity to learn, develop, play and experience a normal life. School age children should be enabled to attend their own school for as long as they can, so that they can benefit from interacting with friends as well as receiving an education. The school can also provide your child and your family with an important source of support, including giving you a break during the day. If your child is no longer able to attend school due to their deteriorating health then education can continue through the hospital or hospice school or through the home tuition service for as long as your child is enjoying the experience and still learning. Things to think about Make sure your child’s school is part of the multidisciplinary team supporting your child…

, Wheelchair Accessible Vehicle, scooter or powered wheelchair. If your child is awarded the highest rate of DLA mobility component, you may be exempt from paying Vehicle Excise Duty. For advice and information on home to school transport you may find IPSEA useful. For more general information about…

Surrey Short Breaks for Disabled Children funds voluntary organisations and SEND schools to provide short break services, including after school clubs, holiday schemes, home-care and more. The Surrey Children’s Disability Register is a voluntary register for a disability or impairment aged 0 to 18 years and living in Surrey. The register helps Surrey County Council plan and monitor services and also operates as a contact list to provide regular information and consultation about short break opportunities, funded by Surrey County Council, through the Surrey Short Breaks for Disabled… Children’s Services and don’t have a social care worker. Parents cannot apply directly themselves, but anyone working with a family can apply on your behalf – such as: a carer’s support worker at Action for Carers Surrey, teachers and Home School Link workers, nurses and health visitors, Children’s…

carers and adult young carers have the right to an assessment of their own needs separate from an assessment of the person you care for or other carers in the family. This is your opportunity to explain what is happening at home and your worries and to see if you can get more help. You will need to see… at home who is approaching the end of life then they will be able to be more understanding with any school pressures and try to help. You may find it easier for your parents or other family members to tell the school. It is important the school know as they may have: A school counsellor for you…

, or care home. Talk to the person you care for about the importance of giving consent to share information (if they have mental capacity to consent) and check information has been passed between professionals. Ask about any training that might be available to help you with your caring role. …

Equipment Equipment can be bought directly from a specialist supplier or household shop without an OT assessment. This might include more minor equipment items such as a raised toilet seat, pressure mattress, bath hoist, over bed table, wheelchair, crutches, or a hospital style bed. If not having an OT assessment it is best the person tries it out first either as a trial period in the home or the store, particularly if it is an expensive item. You, as the carer, also need to ensure it is safe to use and not putting your own health at risk. If the equipment proves helpful you can still arrange for a social care assessment to see if the person would be eligible for financial help. Equipment such as a hospital bed, mattress, or commode can be provided by your local community nursing team. The person’s GP can make a referral to the nursing team and they will come to the home to assess…