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to our directory for further information . To help you with your conversations and use further resources Winston’s Wish teamed up with Macmillan Cancer Support to produce a book for parents who are nearing the end of life to broach the subject with their children. Child Bereavement UK has useful…

You may have to explain to a person with a learning disability that a family member has died and are concerned about their level of understanding and how to do this. Using storyboards and memory books may be a helpful way of communicating with a person with a learning disability about death and enabling them to share their feelings. ‘Access to Learning Disability Healthcare' has developed a Make a Difference Toolkit which includes information and resources on how to support people with a learning disability with end of life care and bereavement. There are also some very helpful books ‘Books Beyond Words' which can be purchased individually on death and loss of a family member. Here is information and advice as well as easy to read resources on how to help people with a learning disability deal with grief .…

Advance Care Plans are usually made by someone with their healthcare team when they are approaching end of life, although they can be started at any stage in life. The plan is used to record the person’s treatment and care wishes and can be reviewed and updated. If the person you care… for about what you are willing and able to provide in relation to providing end of life care so that this is taken into account as part of their Advance Care Plan. Discuss sharing of information with the person and professionals. If the person has mental capacity, have they provided consent (either… A DNAR decision is a written instruction to medical staff not to attempt to bring a person back to life, in other words using Cardiopulmonary resuscitation (CPR) should their heart stop beating or they stop breathing. It does not relate to any other form of medical treatment. The decision is usually…

All carers need to recharge their batteries including young people! It is so important when caring for a person in your family approaching the end of life or if coping with bereavement that you look after yourself too. It is important not to feel guilty about it. Do something you love So what helps you feel less stressed or anxious? It’s important to pick something you love doing. Here are some ideas to get you thinking: Exercising and sports, for example, football, cycling, or running Drawing or painting, for example, you could paint a picture to show how you feel Playing or listening to music Talking to friends Write your feelings down by filling out a daily diary Make a memory jar by writing down a special memory about the person, folding it up, and putting it in the jar Reading a book or watching a TV show or film Walking the dog or taking a trek…

assessment. Specialist voluntary providers. There are a number of voluntary organisations and private care providers in Surrey that can help you to have a break. In particular Crossroads Care Surrey (in partnership with the NHS) can provide a free, end-of-life carer support service for carers… Carers UK’s factsheet about taking a break . Things to think about Try to get a good night’s sleep, although this can be difficult when you are a carer. The person you care for may need help during the night and you need to be with them. Worrying about them and their end of life care can also keep… for will be well looked after whilst you are not there, but try to remind yourself that you come back better able to deal with the demands of end of life care. …

for has to state the specific treatment they do not want and in what circumstances the refusal will apply. If the person you care for chooses not to have a treatment that will keep them alive (known in law as ‘life sustaining treatment’) they have to be very specific about the circumstances, put this in writing, sign it and have it signed by a witness. An example of this might be the refusal of a mechanical ventilator or a blood transfusion. The person you care for cannot refuse care to make them comfortable, nor can they request help to bring about the end of their life. It does not cost…

Connect to Support Surrey, your local directory for care and support services. Whether you're a resident or a professional looking, this guide will help you navigate and make the most from the site. Connect to Support Surrey has a range of care and support services in Surrey, including: community groups and activities help at home services such as, cleaning, meals, shopping regulated care providers for personal care needs transport options , food banks , and more Connect to Support Surrey also has information pages with useful content on various topics, from staying independent to end-of-life care .…

? for the sorts of questions to ask. Don’t rush the conversation – it’s a process and may involve a number of shorter conversations. Little and often may work best. Give some warning to the person you care for that you want to talk about end of life decisions so it doesn’t come as a complete shock…

Here are the things you need to consider as you prepare for your child’s final days, how you prepare to say goodbye to your child, and what happens following their death. Planning for end of life A member of your child’s care team will approach you to discuss what you and your child would like to happen as they become more seriously ill and approach their last days. This will be an incredibly difficult time for you but you should get openness, honesty, and full support from all the professionals around you. You will all be working together to develop a plan for end of life… with a member of your child’s team and this may particularly be the case if your child is not in hospital. It’s important you and your family are able to make the most of the last weeks and days of your child’s life and your child, depending on their age, may have their own wishes and goals to achieve…

descriptions of where care can be provided and who can provide specific child care services. You can find more general information relating to end of life care , where end of life care is provided and who might be involved in end of life care . Where to get help Hospital Palliative and end of life… referred to as ‘respite care’), a children’s hospice will provide specialist nursing care in the family home, symptom management, end of life care and bereavement support. Tailored support is free of charge to families and includes a named key worker and a comprehensive range of therapies and support… and education practitioners. Community children’s nurses Provide specialist nursing care to children at home and will often act as a child’s key worker. They will give specialist intervention for children and young people who have a life limiting illness requiring treatment, symptom control or end…