Search

You and your child’s transport needs will be a crucial part of your child and family care plan. Getting the right help with transport issues can improve daily family life. You can ask your child’s care team about getting driving lessons, accessing specially adapted cars to take bulky equipment… over three. If you are the parent for a young person over 16 and they have care or mobility needs, they may be able to claim a Personal Independence Payment instead. The Motability Scheme helps you get mobile by exchanging your child’s higher rate mobility allowance to lease a new affordable car, Wheelchair Accessible Vehicle, scooter or powered wheelchair. If your child is awarded the highest rate of DLA mobility component, you may be exempt from paying Vehicle Excise Duty. For advice and information on home to school transport you may find IPSEA useful. For more general information about…

Surrey Short Breaks for Disabled Children funds voluntary organisations and SEND schools to provide short break services, including after school clubs, holiday schemes, home-care and more. The Surrey Children’s Disability Register is a voluntary register for a disability or impairment aged 0… Children’s Services and don’t have a social care worker. Parents cannot apply directly themselves, but anyone working with a family can apply on your behalf – such as: a carer’s support worker at Action for Carers Surrey, teachers and Home School Link workers, nurses and health visitors, Children’s… be accessed all year around and the holidays are generally free of charge. Insurance and a medical team with care staff are provided to make sure your child’s health needs are fully met whilst on holiday. For a list of short breaks or holidays for your family . You can also call the Together for Families…

carers which give you an opportunity to meet other young people in a similar situation. They may also offer fun days and evenings out including someone there to listen to your worries. They can also offer information to the rest of your family for example financial advice. Social care support Young carers and adult young carers have the right to an assessment of their own needs separate from an assessment of the person you care for or other carers in the family. This is your opportunity to explain what is happening at home and your worries and to see if you can get more help. You will need to see a social care worker in the team that is supporting your relative or you can ask to speak to a social care worker in the hospice that is providing care. Action for Carers Surrey or your GP can also make a referral on your behalf. School If you tell your teachers that you are looking after someone…

, or care home. Talk to the person you care for about the importance of giving consent to share information (if they have mental capacity to consent) and check information has been passed between professionals. Ask about any training that might be available to help you with your caring role. … discuss the impact of the diagnosis on emotional wellbeing and lifestyle as well as any warning signs to look out for and what to do if anything unexpected happens. Things to think about As it is difficult for you and the person you care for to absorb information in one go, tell the doctor if either of you wants to go over something again. If you don’t understand something then ask it to be repeated or explained in a different way. Ask for a follow up appointment to address the questions you or the person you care for forgot to ask. Help the person make a list of questions beforehand…

Equipment Equipment can be bought directly from a specialist supplier or household shop without an OT assessment. This might include more minor equipment items such as a raised toilet seat, pressure mattress, bath hoist, over bed table, wheelchair, crutches, or a hospital style bed. If not having an OT assessment it is best the person tries it out first either as a trial period in the home or the store, particularly if it is an expensive item. You, as the carer, also need to ensure it is safe to use and not putting your own health at risk. If the equipment proves helpful you can still arrange for a social care assessment to see if the person would be eligible for financial help. Equipment such as a hospital bed, mattress, or commode can be provided by your local community nursing team. The person’s GP can make a referral to the nursing team and they will come to the home to assess…

Adaptations can range in scale and cost. It might be as small as fixing an intercom or as large as an extension to the home. Your local social care team may give financial support for minor adaptations. You may also be entitled to financial help with more major adaptations via a Disabled Facilities Grant. Go to Funding end of life care for more information. Things to think about Make sure the equipment works not just for the person but also for you. Carers UK has a room by room guide on types of equipment that may or may not help. Any decisions about equipment and adaptations also… and handle the person safely. Explore with the person you care for if it is realistic to provide appropriate treatment and care in the home and what impact the necessary equipment, technology, and adaptations might have on their home environment. …

specialised nursing care, medications, medical equipment, and supplies in the person’s own home that might help you. They can help improve the person’s quality of life by managing pain and the symptoms of their illness, but they can also give you emotional support and guidance. So if you haven’t… should I ring if I am worried about the health of the person I care for? If it is a medical emergency then call 999. This can include loss of consciousness, an acute confused state, fits that aren’t stopping, chest pain, breathing difficulties, severe bleeding that won’t stop, and severe allergic… also use the NHS 111 online . What happens if there is a social care emergency out of hours for the person I care for? In this situation, you can call the Emergency Duty Team (EDT) requesting help and support or an urgent assessment. It is an emergency social work service designed only for urgent…

for set up a file and put everything in a desk or drawer, or make a list of all the information and location of papers in a notebook. If the person you care for keeps their original documents in a safety deposit box then make sure they keep a copy of the file at home. Remind them to regularly check… Here’s a summary of how you and the person you care for can work together to get their financial affairs in order in preparation for end of life. It explores what funding sources are out there to support the person you care for, as well as you as their carer. Getting financial affairs in order can be very helpful to the person you care for as it gives them the opportunity to take control of something when their life has been turned upside down. It will also help you as their carer and other family members to deal with their financial affairs after their death during a very difficult…

The person you care for may be very worried about who will look after their pet when they are very ill or after they have died. It may be helpful to them for you to help them plan for their pet’s future either by finding a new home for them or to find some extra help to look after their pet… lost or rehomed a pet. Things to think about Talk to the person you care for about different options in relation to more help or rehoming. Help them to make a list of what type of home their pet might need. Get help and advice from different local charities and organisations about rehoming… and look after pets while someone is in hospital. If looking to rehome a pet, it can help to make a list of things that the person you care for feels are important to their pet and put in priority order for example the amount of inside and outdoor space needed, type of care needed or the amount…

even feel relief. You won’t know until it happens and there is no right or wrong way to feel. If the person dies in hospital, hospice, or care home you may want to ask staff for some time with the body to give you the space you need to cope with how you are feeling. Last offices or laying out the body will mean different things to different people depending on their beliefs, faith, and preferences. For the purposes of this resource, it will refer to the care of the person once they have died. The person’s religion or own preferences may dictate how this is carried out, for example carrying out such tasks yourself or preferring to leave to others. Ideally, this should be discussed with the person prior to death as part of their advance care plan .…