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that they can benefit from interacting with friends as well as receiving an education. The school can also provide your child and your family with an important source of support, including giving you a break during the day. If your child is no longer able to attend school due to their deteriorating…. Keep your child’s school informed of your child’s health condition and any absences. Explore with the school how to help your child keep up with school work and any additional support they might need. Ensure the schools of any other children in your family are aware of the family situation so that adequate support can be given to them as well. …

You may need specialist aids and equipment to care for your child. You and your child may be assessed by an Occupational Therapist from your primary care trust or children’s team who can inform you about the options and services open to you. Any aids and equipment should be included in your Child and Family Care Plan. If needing specialist continence aids for example nappies, talk to the health visitor or children’s nursing team for advice. Education and Resources for Improving Childhood Incontinence (ERIC) Helpline service provides support for children, parents and professionals who… the vital equipment, support and life skills they need to reach their full potential.…

will feel most comfortable. You also need to be clear about what outcome you want to achieve from talking to a trusted person. Is it emotional support you are seeking, practical support, or both? Do you just want to be listened to?…

Local hospice The person you are caring for may have a key professional at a local hospice and they will understand how you are feeling as they meet many young carers. If you are caring for a sibling Christopher’s Children’s Hospice offers support to the whole family including sibling groups… carers which give you an opportunity to meet other young people in a similar situation. They may also offer fun days and evenings out including someone there to listen to your worries. They can also offer information to the rest of your family for example financial advice. Social care support Young… teaching support Allowing you to keep your mobile on in class in case of emergencies The Internet There are lots of charities and organisations that can help provide you with information about the illness of the person you care for and an opportunity to talk. Some of these charities have helplines…

Adaptations can range in scale and cost. It might be as small as fixing an intercom or as large as an extension to the home. Your local social care team may give financial support for minor adaptations. You may also be entitled to financial help with more major adaptations via a Disabled Facilities Grant. Go to Funding end of life care for more information. Things to think about Make sure the equipment works not just for the person but also for you. Carers UK has a room by room guide on types of equipment that may or may not help. Any decisions about equipment and adaptations also need to take into account the risks to your own physical wellbeing, particularly where moving and handling of the person is involved. The carers moving and handling team are able to give you details on how to access a back care assessment by a back care advisor as well as training on how to move…

Whilst the person you care for is still able to swallow, tablets or liquid medicine will continue to be prescribed by their GP. If the person wishes you to help administer their medication then make sure you are giving the medicines at the right time of day. If you are giving them at the wrong ti…

should not ignore them completely. Look out for the warning signs. This way you may be able to prevent behavioural outbursts. For example, the person you care for may feel anxious or agitated if in large groups, so you could arrange for them to be in small groups or have one to one support. See…

also use the NHS 111 online . What happens if there is a social care emergency out of hours for the person I care for? In this situation, you can call the Emergency Duty Team (EDT) requesting help and support or an urgent assessment. It is an emergency social work service designed only for urgent… specialised nursing care, medications, medical equipment, and supplies in the person’s own home that might help you. They can help improve the person’s quality of life by managing pain and the symptoms of their illness, but they can also give you emotional support and guidance. So if you haven’t already been put in touch with your local hospice by the person’s GP or district nurse think about making early contact. What if I feel I need urgent mental health support for either myself or the person I care for?  If you are seeking urgent mental health support during evenings and weekends and you…

Here’s a summary of how you and the person you care for can work together to get their financial affairs in order in preparation for end of life. It explores what funding sources are out there to support the person you care for, as well as you as their carer. Getting financial affairs in order can be very helpful to the person you care for as it gives them the opportunity to take control of something when their life has been turned upside down. It will also help you as their carer and other family members to deal with their financial affairs after their death during a very difficult and emotional time. “Getting financial affairs in order” will mean different things to different people but generally speaking it will involve you helping the person you care for to do the following: Put all important papers and copies of legal documents in one place. Help the person you care…

Here’s a quick guide for planning end of life care with the person you care for. It explores the importance of taking a planned approach and highlights a number of ways in which, together, you can make an advance plan whilst the person you care for has the mental capacity to make their own decisi…