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Free assessments for people with Down’s syndrome over 30

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to contact them and making sure relevant professionals know how to contact you How to look after yourself and your family through the provision of emotional support, spiritual and cultural support, transport, training and very importantly short breaks. Things to think about Make sure an appropriate… within the first 3 days of discharge. Make sure other children in your family are not forgotten. They will also need lots of support to understand what is going on at such a difficult time. …

that they can benefit from interacting with friends as well as receiving an education. The school can also provide your child and your family with an important source of support, including giving you a break during the day. If your child is no longer able to attend school due to their deteriorating…. Keep your child’s school informed of your child’s health condition and any absences. Explore with the school how to help your child keep up with school work and any additional support they might need. Ensure the schools of any other children in your family are aware of the family situation so that adequate support can be given to them as well. …

You may need specialist aids and equipment to care for your child. You and your child may be assessed by an Occupational Therapist from your primary care trust or children’s team who can inform you about the options and services open to you. Any aids and equipment should be included in your Child and Family Care Plan. If needing specialist continence aids for example nappies, talk to the health visitor or children’s nursing team for advice. Education and Resources for Improving Childhood Incontinence (ERIC) Helpline service provides support for children, parents and professionals who… the vital equipment, support and life skills they need to reach their full potential.…

When a person receives a terminal diagnosis it can create a wide range of emotions for them and you as their family carer. You and the person may feel angry, may feel it is unfair, may feel sad, shocked, or in denial. Living with a terminal illness can sometimes make family relationships difficult, but it can also bring you closer together. The doctor and healthcare team should be honest with the person and you as their carer about what the diagnosis means, the prognosis, and what the treatment options are. This includes explaining any medical terms in plain language. They should give all the information the person needs to make a decision about treatment and explain the advantages and disadvantages of each treatment option, including any potential risks and side effects. The doctor can recommend treatment but should not pressure the person to accept it. The doctor should also…

Equipment Equipment can be bought directly from a specialist supplier or household shop without an OT assessment. This might include more minor equipment items such as a raised toilet seat, pressure mattress, bath hoist, over bed table, wheelchair, crutches, or a hospital style bed. If not having an OT assessment it is best the person tries it out first either as a trial period in the home or the store, particularly if it is an expensive item. You, as the carer, also need to ensure it is safe to use and not putting your own health at risk. If the equipment proves helpful you can still arrange for a social care assessment to see if the person would be eligible for financial help. Equipment such as a hospital bed, mattress, or commode can be provided by your local community nursing team. The person’s GP can make a referral to the nursing team and they will come to the home to assess…

Whilst the person you care for is still able to swallow, tablets or liquid medicine will continue to be prescribed by their GP. If the person wishes you to help administer their medication then make sure you are giving the medicines at the right time of day. If you are giving them at the wrong ti…

Organs can only be donated if the person you care for dies in hospital, usually in intensive care where the blood can be kept circulating. However, tissue (such as bone, skin, heart valves, corneas, and many others) can be donated up to 48 hours after a death which does not necessarily occur in a hospital. Up to 50 people can benefit from tissue donated from just one person. From spring 2020 the law around organ donation changed. All adults in England will be considered to have agreed to organ and tissue donation when they die unless they have recorded a decision NOT to donate or are in one of the excluded groups. If the person you care for does not want to be an organ donor they will need to opt-out by registering a ‘refuse to donate’ decision on the NHS Organ Donor Register and by sharing their decision with you. It’s important they tell you what they want, as the family…

a deputy is often a carer, relative, or friend, in some circumstances it could be a professional such as a solicitor, accountant, or another professional felt to be appropriate by the Court of Protection. To be a deputy you do need to be 18 years or over and agree to be a deputy. It’s also possible…